Hello Everyone!

What a week! Scott and I have had a hard time wrapping our brain around how much support and compassion we have received from people all around the world!!! Noah was the 17th most googled topic on Thursday and 12th on Friday!! Unbelievable!!!!!!!

Thank you to everyone for the support! Thank you to everyone that listened to my requests for peace. Thank you to Mindy for setting up security for my front door today!! Thank you to the South Lyon Police, Fire, and Post Office for the help and support over the past week. Today was the first day that I could relax. We had a person sitting out front guarding the door. My family and I didn’t have to worry about whether the person walking up was going to knock or ring the doorbell. Yes, I do have a sign on the door.

I just wanted to note something interesting. Last Saturday, I posted a little note on this carepage — it said that we were celebrating Christmas this week. If you would like to send Noah a card, send me an email and I will give you my address!! Our friends and family have repeatedly asked us for something to do to help. Asking for a Christmas card was something simple that many people could do. They posted it on Facebook and BAMMMMM!!!!!!! Next thing I know, we are receiving thousands of cards and packages. Tuesday — 64, Wednesday — 416, Thursday — 2,600, Friday — 5,100 and Saturday — ??????? At least 10,000. Yes, you read that right — at least 10,000.

We are opening and reading each and every card. This is taking some time. It is just humbling, shocking, incredible, astounding… the outpouring of love for one sick little boy.

Friday night, Noah loved meeting Santa. He wasn’t so sure about the fire truck or Santa coming on the fire truck. We waved from the balcony. Noah feels safe in my bedroom. That’s where he spends most of his time. He wouldn’t come out of the bedroom so Santa went in. He sat on the floor and opened presents with Noah, Scott, and I. Then I went out to make sure everyone was doing well and Santa sat right next to Noah. Noah wrapped his arms around Santa’s neck and wouldn’t let go.

The smile on his face was worth it. He smiled from ear to ear.

Saturday, Noah loved opening presents and let me tell you — there isn’t a shortage of them!! We had a crew at the house and he would pick which person he wanted to play with and that person went into the bedroom and played. When he had enough, he would sleep. We decided to have Santa come on Friday for two reasons. 1.) Santa needed to have time to get back to the North Pole. 2.) Noah needed a day of rest between the big events.

Today was a very merry Christmas! Noah, my mom, and I woke to a Christmas tree in our front yard, fully decorated with wrapped presents underneath. Noah thought that was the coolest thing. Again — the smile said it all. He spent most of the day in my bedroom. No shocker there! He was stingy with his happy face today. He slept quite a bit and he seems to be hurting again.

Noah is having pain in the left elbow and upper body. This is all new pain. However, he’s stubborn as a mule and won’t let me give him any IV pain meds. We keep increasing his Methadone which we did on Friday. That hasn’t seemed to help much. You can see the difference in him. You can see him slowing down. You can see him in pain and just plain getting tired. He’s just at that point.

No matter how hard this is or how painful it is, Scott, my family, and I can say one thing — Noah had Christmas today. And for that, I am grateful.

Merry Christmas Everyone! The world helped make it special for Noah, my family, Scott, and myself. I can guarantee one thing — This week was a week that none of us will ever forget.

Thanks

pray for Logan who is beating this cancer right now!
http://loganjameslewis.blogspot.com/

Children of any age with Stage 1 Neuroblastoma have a cure rate greater than 90%.

Long-term survival in Stage 2 patients over the age of 1 year can range from 75% to 90%, depending on the age of the child and the success of the treatments administered.

Patients with Stage 2B or 3 Neuroblastoma over the age of 1 year have a survival rate of approximately 50% to 70%. Those younger than 1 year of age have a cure rate of around 80%.

Patients with Stage 4 or 4S Neuroblastoma under the age of 1year tend to have a cure rate of 50% to 80%. Those patients over the age of 1 year have a cure rate of 10% to 40%.